Comment from Polizois Stephanie
AnonymousSupportIndividual
Summary: The commenter, representing the Huntington's Disease community, emphasizes the urgent need for new treatments and research for this fatal neurodegenerative disorder. They advocate for the rapid advancement of promising drugs from clinical trials to the general public.
The Huntington’s Disease community desperately needs to capitalize on the promising research and drug development currently in the pipeline. This is a progressive neurodegenerative disorder that slowly robs a person of their movement, cognition, and ultimately their personality. It is 100% fatal and there are currently no treatments to modify the disease course. Once a person is diagnosed, which is often in the prime of their mid adulthood, they are certain of their fate. Worse yet, each child of a parent with HD has a 50% chance of inheriting the gene expansion and often being affected by symptoms even earlier. There are treatments that are already showing promise in slowing the progression of the disease in clinical trials and we need these treatments to reach the greater community as soon as possible!!!