Comment from Goodman Leah
AnonymousOpposeIndividual
Summary: A private individual who is the daughter of a patient expresses strong opposition to withdrawing the drug Tavneos from the market. They argue that the medication saved their mother's life and restored her kidney function following a diagnosis of Pauci-immune glomerulonephritis.
Tavneos has saved my mother’s life. She was seriously ill and hospitalized. For months we watched her decline with no diagnosis. Finally, a brilliant doctor was able to finally diagnose her with Pauci-immune glomerulonephritis, a very rare auto-immune disorder that was attacking her kidneys. Once diagnosed, a wonderful nephrologist worked with my mother on a treatment plan which included Tavneos. My mother was terrified of side effects but also needed something to address her serious condition and agreed to try it. She is now in remission with near normal kidney function restored and a full life. While the concerns raised are valid, please do not take this life saving drug off the market!