Comment from Mahajan, Deepali
AnonymousOpposeIndividual
Summary: A patient with GPA Vasculitis shares their positive personal experience with Tavneos (avacopan), stating that the medication has significantly improved their quality of life and put their condition into remission. They argue against the withdrawal of the drug's approval, describing it as life-saving for those with the condition.
I have GPA Vasculitis and I want to share my positive experience with Tavneos (avacopan), which I have been taking since November 2025. Since starting this medication, my condition has steadily improved and is now moving into remission.
I have experienced no side effects or issues with the drug. In line with monitoring guidelines, I have my liver function tested monthly, and my results have remained completely stable. Tavneos has significantly improved my quality of life and successfully put my condition into remission.
I hope this drug continues to stay on market as it is life saving for many of us who are going through this condition.